Telemedicine for Follow-Up of Rare Neurological Disease.
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0000-00-00
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Background and Purpose Providing ongoing care for rare neurological conditions is challenging Telemedicine can reduce patient travel We set up and evaluated a telemedicine service for patients with a genetic form of stroke and dementia cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy Methods One hundred fourteen patients with mutation positive cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy 64 telemedicine and 50 face to face were recruited Patient and clinician satisfaction questionnaires rated the service to create a mean satisfaction score for both face to face and telemedicine follow up appointments Results There was no difference in mean SD patient or clinician satisfaction scores between telemedicine and face to face appointments patient 4 57 0 56 and 4 69 0 42 P 0 99 clinician 4 55 0 49 and 4 60 0 43 P 0 44 Conclusions Telemedicine follow up was suited to patients with stroke and dementia and offered satisfaction levels similar to that for face to face consultations