From Narratives to Numbers: Data Work and Patient-Generated Health Data in Consultations.
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Abstract
This article presents preliminary findings on how the introduction of patient generated health data PGHD triggers changes during patient nurse consultations This article builds on a two year case study examining the work practice at a cancer rehabilitation clinic at a Swedish Hospital using PGHD The study focuses on how nurses use data gathered by patients with a mobile phone app during consultations The use of PGHD introduce a change in the translation work the work of turning rich patient descriptions and transform them into data during the consultation for documentation and clinical decision making This change affects precision questions asked and the use of visualizations as well as the patient nurse decision making