Browsing by Author "Ruland, Cornelia M"
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- ItemChallenges in presenting categories of symptoms in a home health care system for cancer patients.(2006-06-16) Ruland, Cornelia M; Slaughter, Laura; Kaufmann, David; Andersen, RoarWe investigated how patients use a symptom selection tool developed for use within Web CHOICE an Internet based support system for cancer patients This tool allows patients to browse a classification system that includes over 100 symptoms and select the symptoms they experience under the appropriate category During the design process it became apparent that this structure presents considerable challenges to patients There is a need to 1 provide more flexible views of symptom categories 2 display relationships between symptoms and 3 make use of limited screen space The first phase of usability testing has also shown a need for better visualization tools for viewing the symptom classification
- ItemChildren's contributions to designing a communication tool for children with cancer.(2007-10-03) Ruland, Cornelia M; Slaughter, Laura; Starren, Justin; Vatne, Torun M; Moe, Elisabeth YIn this paper we describe the roles played as well as contributions made by child participants in the design of an innovative communication tool for children with cancer SISOM is a handheld portable computer application with a graphical user interface that is meant to 1 help children with cancer communicate their symptoms problems in a child friendly age adjusted manner and 2 assist clinicians in addressing children s experienced symptoms and problems in patient care Unlike other applications for children the purpose of SISOM is not to provide information to ill children but to elicit personal information from them Thus the application has a unique set of design issues Healthy and ill children played an important role in different stages in the design process They made significant contributions to the graphical design of the system s interface selection of understandable child friendly terms used by the system to describe symptoms iconic and graphical representations and its usability We describe the participatory design methods we used that included children and share important insights from this collaborative design process
- ItemCreating Gameful Design in mHealth: A Participatory Co-Design Approach.(0000-00-00) Jessen, Stian; Mirkovic, Jelena; Ruland, Cornelia MBACKGROUND Gameful designs gamification using design pieces and concepts typically found in the world of games is a promising approach to increase users engagement with and adherence to electronic health and mobile health mHealth tools Even though both identifying and addressing users requirements and needs are important steps of designing information technology tools little is known about the users requirements and preferences for gameful designs in the context of self management of chronic conditions OBJECTIVE This study aimed to present findings as well as the applied methods and design activities from a series of participatory design workshops with patients with chronic conditions organized to generate and explore user needs preferences and ideas to the implementation of gameful designs in an mHealth self management app METHODS We conducted three sets of two consecutive co design workshops with a total of 22 participants with chronic conditions In the workshops we applied participatory design methods to engage users in different activities such as design games scenario making prototyping and sticky notes exercises The workshops were filmed and the participants interactions written products ideas and suggestions were analyzed thematically RESULTS During the workshops the participants identified a wide range of requirements concerns and ideas for using the gameful elements in the design of an mHealth self management app Overall inputs on the design of the app concerned aspects such as providing a positive user experience by promoting collaboration and not visibly losing to someone or by designing all feedback in the app to be uplifting and positive The participants provided both general inputs regarding the degree of competitiveness use of rewards or possibilities for customization and specific inputs such as being able to customize the look of their avatars or by having rewards that can be exchanged for real world goods in a gift shop However inputs also highlighted the importance of making tools that provide features that are meaningful and motivating on their own and do not only have to rely on gameful design features to make people use them CONCLUSIONS The main contribution in this study was users contextualized and richly described needs and requirements for gamefully designed mHealth tools for supporting chronic patients in self management as well as the methods and techniques used to facilitate and support both the participant s creativity and communication of ideas and inputs The range variety and depth of the inputs from our participants also showed the appropriateness of our design approach and activities These findings may be combined with literature and relevant theories to further inform in the selection and application of gameful designs in mHealth apps or they can be used as a starting point for conducting more participatory workshops focused on co designing gameful health apps
- ItemDeveloping a shared electronic health record for patients and clinicians.(2008-05-19) Ruland, Cornelia M; Brynhi, Haakon; Andersen, Roar; Bryhni, ToreImproving Shared Decision Making SDM and patient provider communication and providing all citizens with equal access to health information has become a high priority health policy goal In this interdisciplinary international research collaboration we develop and test CONNECT Care Online Novel Networks to Enhance Communication and Treatment a patient portal that integrates a suite of context sensitive patient communication and information tools into a patient clinician shared electronic health record that patients can use seamlessly through heterogeneous networks from different locations home hospital doctor s office In this paper we present methods used to develop CONNECT how to safeguard data security and confidentiality and adapt user interfaces to different users devices and contexts of use as well as ensure safe and efficient data transfer through heterogeneous networks and critical success factors and challenges
- ItemDeveloping Technology to Mobilize Personal Strengths in People with Chronic Illness: Positive Codesign Approach.(0000-00-00) Mirkovic, Jelena; Jessen, Stian; Kristjánsdóttir, Olöf Birna; Krogseth, Tonje; Koricho, Absera Teshome; Ruland, Cornelia MBACKGROUND Emerging research from psychology and the bio behavioral sciences recognizes the importance of supporting patients to mobilize their personal strengths to live well with chronic illness Positive technology and positive computing could be used as underlying design approaches to guide design and development of new technology based interventions for this user group that support mobilizing their personal strengths OBJECTIVE A codesigning workshop was organized with the aim to explore user requirements and ideas for how technology can be used to help people with chronic illness activate their personal strengths in managing their everyday challenges METHODS Thirty five participants from diverse backgrounds patients health care providers designers software developers and researchers participated The workshop combined principles of 1 participatory and service design to enable meaningful participation and collaboration of different stakeholders and 2 an appreciative inquiry methodology to shift participants attention to positive traits values and aspects that are meaningful and life giving and stimulate participants creativity engagement and collaboration Utilizing these principles participants were engaged in group activities to develop ideas for strengths supportive tools Each group consisted of 3 8 participants with different backgrounds All group work was analysed using thematic analyses RESULTS Participants were highly engaged in all activities and reported a wide variety of requirements and ideas including more than 150 personal strength examples more than 100 everyday challenges that could be addressed by using personal strengths and a wide range of functionality requirements eg social support strength awareness and reflection and coping strategies 6 concepts for strength supportive tools were created These included the following a mobile app to support a person to store reflect on and mobilize one s strengths Strengths treasure chest app empathy glasses enabling a person to see a situation from another person s perspective Empathy Simulator and a mobile app allowing a person to receive supportive messages from close people in a safe user controlled environment Cheering squad app Suggested design elements for making the tools engaging included metaphors eg trees treasure island visualization techniques eg dashboards color coding and multimedia eg graphics Maintaining a positive focus throughout the tool was an important requirement especially for feedback and framing of content CONCLUSIONS Combining participatory service design and appreciative inquiry methods were highly useful to engage participants in creating innovative ideas Building on peoples core values and positive experiences empowered the participants to expand their horizons from addressing problems and symptoms which is a very common approach in health care today to focusing on their capacities and that which is possible despite their chronic illness The ideas and user requirements combined with insights from relevant theories eg positive technology self management and evidence from the related literature are critical to guide the development of future more personalized and strengths focused self management tools
- ItemHandheld technology to improve patient care: evaluating a support system for preference-based care planning at the bedside.(2002-02-25) Ruland, Cornelia MOBJECTIVE Despite an increasing movement toward shared decision making and the incorporation of patients preferences into health care decision making little research has been done on the development and evaluation of support systems that help clinicians elicit and integrate patients preferences into patient care This study evaluates nurses use of CHOICE a handheld computer based support system for preference based care planning which assists nurses in eliciting patients preferences for functional performance at the bedside Specifically it evaluates the effects of system use on nurses care priorities preference achievement and patients satisfaction DESIGN Three group sequential design with one intervention and two control groups N 155 In the intervention group nurses elicited patients preferences for functional performance with the handheld computer based CHOICE application as part of their regular admission interview preference information was added to patients charts and used in subsequent care planning RESULTS Nurses use of CHOICE made nursing care more consistent with patient preferences F 11 4 PUnder0 001 and improved patients preference achievement F 4 9 PUnder0 05 Furthermore higher consistency between patients preferences and nurses care priorities was associated with higher preference achievement r 0 49 PUnder0 001 CONCLUSION In this study the use of a handheld computer based support system for preference based care planning improved patient centered care and patient outcomes The technique has potential to be included in clinical practice as part of nurses routine care planning
- ItemSupporting cancer patients in illness management: usability evaluation of a mobile app.(2014-08-14) Mirkovic, Jelena; Kaufman, David R; Ruland, Cornelia MBACKGROUND Mobile phones and tablets currently represent a significant presence in people s everyday lives They enable access to different information and services independent of current place and time Such widespread connectivity offers significant potential in different app areas including health care OBJECTIVE Our goal was to evaluate the usability of the Connect Mobile app The mobile app enables mobile access to the Connect system an online system that supports cancer patients in managing health related issues Along with symptom management the system promotes better patient provider communication collaboration and shared decision making The Connect Mobile app enables access to the Connect system over both mobile phones and tablets METHODS The study consisted of usability tests of a high fidelity prototype with 7 cancer patients where the objectives were to identify existing design and functionality issues and to provide patients with a real look and feel of the mobile system In addition we conducted semistructured interviews to obtain participants feedback about app usefulness identify the need for new system features and design requirements and measure the acceptance of the mobile app and its features within everyday health management RESULTS The study revealed a total of 27 design issues 13 for mobile apps and 14 for tablet apps which were mapped to source events ie errors requests for help participants concurrent feedback and moderator observation We also applied usability heuristics to identify violations of usability principles The majority of violations were related to enabling ease of input screen readability and glanceability 15 issues as well as supporting an appropriate match between systems and the real world 7 issues and consistent mapping of system functions and interactions 4 issues Feedback from participants also showed the cancer patients requirements for support systems and how these needs are influenced by different context related factors such as type of access terminal eg desktop computer tablet mobile phone and phases of illness Based on the observed results we proposed design and functionality recommendations that can be used for the development of mobile apps for cancer patients to support their health management process CONCLUSIONS Understanding and addressing users requirements is one of the main prerequisites for developing useful and effective technology based health interventions The results of this study outline different user requirements related to the design of the mobile patient support app for cancer patients The results will be used in the iterative development of the Connect Mobile app and can also inform other developers and researchers in development integration and evaluation of mobile health apps and services that support cancer patients in managing their health related issues
- ItemTranslating clinical informatics interventions into routine clinical care: how can the RE-AIM framework help?(2009-11-10) Bakken, Suzanne; Ruland, Cornelia MOBJECTIVE Clinical informatics intervention research suffers from a lack of attention to external validity in study design implementation evaluation and reporting This hampers the ability of others to assess the fit of a clinical informatics intervention with demonstrated efficacy in one setting for implementation in their setting The objective of this model formulation paper is to demonstrate the applicability of the RE AIM Reach Effectiveness Adoption Implementation and Maintenance framework with proposed extensions to clinical informatics intervention research and describe the framework s role in facilitating the translation of evidence into practice and generation of evidence from practice Both aspects are essential to reap the clinical and public health benefits of clinical informatics research DESIGN We expanded RE AIM through the addition of assessment questions relevant to clinical informatics intervention research including those related to predisposing enabling and reinforcing factors and validated it with two case studies RESULTS The first case study supported the applicability of RE AIM to inform real world implementation of a clinical informatics intervention with demonstrated efficacy in randomized controlled trials RCTs the Choice Creating better Health Outcomes by Improving Communication about Patients Experiences intervention The second an RCT of a personal digital assistant based decision support system for guideline based care illustrated how RE AIM can be used to inform the design of an efficacy RCT that captures essential contextual details typically lacking in RCT design and reporting CONCLUSION The case studies validate through example the applicability of RE AIM to inform the design implementation evaluation and reporting of clinical informatics intervention studies