Involving health professionals in the development of an advanced symptom management system for young people: the ASyMS-YG study.
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Date
2009-08-03
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Abstract
PURPOSE OF THE STUDY ASyMS is an advanced symptom management system utilising mobile phone technology for patients to report cancer chemotherapy related symptoms The aim of this paper is to present health professionals involvement in the development of ASyMS for use with young people YG and evaluate their perceptions of the system STAGE 1 Health professionals reviewed the symptoms chosen by young people to be included on the personal digital assistant questionnaire to confirm they would have universal relevance These included mouth sores nausea diarrhoea vomiting and weight loss STAGE 2 Health professionals completed a questionnaire prior to the study commencing which suggested they felt ASyMS YG would give young people control and facilitate timely interventions when symptoms occur Post study perceptions were sought through semi structured interviews and consultation sessions with 23 health professionals These showed two over arching themes young people s symptoms and perceptions of ASyMS YG and six sub themes increased control for young people enhances communication between young people and health professionals and helps with professional early intervention increased support for young people improve knowledge and understanding technology appealing to young people CONCLUSIONS This early development work indicates that ASyMS YG is acceptable to health professionals and their perceptions of the system were overall very positive Health professionals will continue to be involved in the study through developing self care guidelines and alert system which will be tested in an exploratory trial stage 3 and randomised controlled trial stage 4 in the future
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Young people (10-24 years), At risk for a particular disease or infection, Client, Quality of care, Acceptability, Addressing individual beliefs and practices, Alignment with local norms, Timeliness of care, Efficiency, Pilot, Non-communicable diseases, Cancer, Chronic care, Disease management, Data collection and reporting, Electronic checklists, Digital form, Text